Axonome, operated by Axonome LLC (“Axonome,” “we,” “us,” or “our”), respects your privacy. This Privacy Policy explains how we collect, use, share, and protect information when you visit or interact with Axonome.com and any related pages, newsletters, forms, or online services where this Privacy Policy is posted.

Axonome is an informational website focused on neurodegenerative disease, neuroscience, biomedical research, disease mechanisms, and related educational content. Axonome does not provide medical advice, diagnosis, treatment, professional healthcare services, or emergency services. Information you provide through Axonome is not part of a doctor-patient relationship and should not be treated as protected medical communication.

By using Axonome, you agree to the practices described in this Privacy Policy. Please also review our Terms of Use.

1. Information We Collect

We may collect information in the following ways.

Information You Provide to Us

You may choose to provide information directly to Axonome, such as when you:

• Contact us by email or through a website form;

• Subscribe to a newsletter or research update;

• Submit feedback, corrections, questions, or suggestions;

• Participate in surveys or optional site features, if offered in the future.

The information you provide may include your name, email address, message content, and any other information you choose to include.

Please do not submit sensitive personal health information, medical records, genetic information, insurance information, Social Security numbers, financial account information, or urgent medical questions through Axonome. Axonome is not designed to receive or store confidential medical information.

Information Collected Automatically

When you visit Axonome, we may automatically collect certain technical and usage information, including:

• IP address;

• Browser type and version;

• Device type and operating system;

• Pages viewed;

• Referring and exit pages;

• Date and time of visit;

• General location inferred from IP address;

• Interactions with site content, such as clicks, scrolls, and navigation patterns.

This information helps us understand how visitors use the site, improve content, troubleshoot technical issues, and maintain site security.

Cookies and Similar Technologies

Axonome may use cookies, pixels, web beacons, local storage, analytics tools, or similar technologies to operate and improve the website.

Cookies may be used to:

• Remember user preferences;

• Understand site traffic and usage patterns;

• Improve page performance;

• Measure the effectiveness of content;

• Support newsletter, analytics, or embedded third-party services.

You can usually adjust your browser settings to refuse or delete cookies. However, some parts of the site may not function properly if cookies are disabled.

2. How We Use Information

Axonome may use collected information to:

• Operate, maintain, and improve the website;

• Respond to messages, questions, feedback, or correction requests;

• Send newsletters or updates, if you choose to subscribe;

• Understand which topics and pages are most useful to visitors;

• Improve scientific, educational, and editorial content;

• Detect, prevent, or address technical issues, fraud, abuse, or security risks;

• Comply with legal obligations;

• Enforce our Terms of Use and other site policies.

We do not use information you provide to diagnose, treat, or provide individualized medical recommendations.

3. Email Communications and Newsletters

If you subscribe to an Axonome newsletter or email update, we may use your email address to send educational content, research updates, site announcements, or related information.

You may unsubscribe from promotional or newsletter emails at any time by using the unsubscribe link in the email or by contacting us at [insert contact email].

If you contact us by email, your communication may not be encrypted. Please avoid sending sensitive medical, financial, or personal information by email.

4. Analytics and Third-Party Services

Axonome may use third-party services to help operate the website, measure traffic, deliver newsletters, host content, improve performance, or analyze how visitors interact with the site.

These third parties may collect information through cookies or similar technologies according to their own privacy policies. Examples may include:

• Website hosting providers;

• Analytics providers, such as Google Analytics or similar services;

• Email newsletter platforms;

• Embedded media providers;

• Security or spam-prevention tools.

We do not control the privacy practices of third-party services, and we encourage you to review their privacy policies.

5. Advertising and Affiliate Links

At this stage, Axonome may not display advertising or use affiliate links. If Axonome later includes advertising, sponsorships, affiliate links, or similar monetization features, this Privacy Policy will be updated to explain how related data may be collected, used, or shared.

Axonome will strive to maintain a clear distinction between editorial content and any advertising, sponsored, or affiliate content.

6. How We Share Information

Axonome does not sell your personal information for direct payment.

We may share information in limited circumstances, including:

• With service providers that help us operate the website, send newsletters, analyze traffic, or maintain security;

• When necessary to respond to your request or communication;

• To comply with law, legal process, government request, or regulatory obligation;

• To protect the rights, safety, property, or security of Axonome, users, or others;

• In connection with a merger, acquisition, restructuring, sale, transfer, or other change involving Axonome LLC or its assets;

• With your consent.

We may also share aggregated or de-identified information that does not reasonably identify you.

7. Health-Related Content and Sensitive Information

Axonome publishes health- and science-related educational content, but it is not a healthcare provider, medical record system, patient portal, telemedicine platform, or emergency service.

You should not submit personal medical history, symptoms, genetic results, diagnoses, treatment plans, medication details, or other sensitive health information to Axonome. If you choose to provide such information voluntarily, we may receive it, but we do not request it and cannot guarantee that communications through ordinary website forms or email are appropriate for sensitive health matters.

If you have a medical emergency, call emergency services immediately. If you have personal medical questions, consult a licensed healthcare professional.

8. Data Retention

We retain personal information only for as long as reasonably necessary for the purposes described in this Privacy Policy, including to respond to inquiries, maintain records, operate the website, comply with legal obligations, resolve disputes, and enforce agreements.

Newsletter subscription information may be retained until you unsubscribe or request deletion, subject to legal or technical limitations.

9. Data Security

We use reasonable administrative, technical, and organizational safeguards designed to protect information from unauthorized access, loss, misuse, alteration, or disclosure.

However, no website, email system, or method of electronic transmission is completely secure. You use Axonome and submit information at your own risk.

10. Your Choices

Depending on your location and applicable law, you may have rights to:

• Request access to personal information we maintain about you;

• Request correction or deletion of personal information;

• Opt out of newsletter or promotional emails;

• Adjust cookie settings through your browser;

• Limit certain analytics or tracking technologies through available browser or device controls.

To make a request, contact us at [insert privacy contact email]. We may need to verify your identity before responding.

11. Children’s Privacy

Axonome is intended for a general audience and is not directed to children under 13. We do not knowingly collect personal information from children under 13.

If you believe a child has provided personal information to Axonome, please contact us at [insert privacy contact email], and we will take appropriate steps to delete the information if required by law.

12. Links to Other Websites

Axonome may link to third-party websites, journal articles, clinical trial registries, academic institutions, nonprofit organizations, government agencies, medical resources, or other external sources.

We are not responsible for the privacy practices, content, accuracy, or security of third-party websites. Visiting those websites is subject to their own terms and privacy policies.

13. International Visitors

Axonome is operated from the United States. If you access Axonome from outside the United States, your information may be processed in the United States or other locations where our service providers operate.

By using Axonome, you understand that privacy laws in the United States may differ from those in your country.

14. Changes to This Privacy Policy

We may update this Privacy Policy from time to time. When we make changes, we will revise the “Last Updated” date at the top of this page.

Your continued use of Axonome after changes are posted means you accept the updated Privacy Policy.

15. Contact Us

If you have questions, concerns, or requests related to this Privacy Policy, please contact:

Axonome LLC
Email: ben@axonome.org
Website: axonome.org
Mailing Address: 200 S. Brentwood Blvd 20F, St. Louis, MO, 63105